Tuesday, April 26, 2016

An act of heart


I am writing this and I can't stop crying. I've been at the hospital a few days now with my 6 month old Maryam who was with born with a few health issues and suddenly things got worse, so she's getting different tests and exams. When my husband came back to the hospital today from an outing with my 3-year old, I told him I really needed a break from the hospital to get some fresh air. I drove to a nearby restaurant and sat outside enjoying the sunset and quiet dinner. I asked for the bill and the waiter gave me this note that read: "I noticed you had a Levine Children's Hospital lanyard on. I wanted to buy you dinner because I know how hard it is to be in the hospital. I wish you well. You are in my prayers". I realized I was still wearing the ID parent badge that parents wear while in the hospital with their kids. This note had me in uncontrollable tears. It absolutely blew me away. I was trying to stay strong and this sweet and giving gesture took the emotions out of me in a second. Unfortunately, this gracious person had already left the restaurant. I wish I was able to meet her and give her a huge meaningful hug. The world has some awesome people in it. Thank you. You touched me beyond words. #LCH 

Wednesday, April 20, 2016

I salute you

I have met some of the kindest most giving people throughout my daughter's journey with special needs. Her supervising physical therapist knew the health struggles Maryam was going through being admitted to the hospital twice this week, and she didn't leave our side. She stayed with me at home while I got ready to pack, came with me to the pediatrician to help me along the way, drove with me to the hospital and stayed until we were able to speak with doctors about what's going on. She got a call amidst all of this from her family saying that her father was admitted to the ER because of a fall. Her brother with down syndrome, who was the reason she went into the special needs field,  anxiously wanted her to be with him. With all that going on in her family, she didn't leave Maryam's side right away. She made sure she was in good hands before leaving to her family. I saw selflessness and sacrifice. I will never forget how she stood by me and cared so much about Maryam as if she was her own daughter. I have a whole new level of respect for all those in the field of special needs. It seriously takes a tremendous amount of patience to be in it. Hats off to you.